Huber CH Parents of the handicapped child: facilitating acceptance through group counselling. Pers Guid J. 1979; 57:(5)267-269
Urbano MHLondon: Chapman and Hall; 1992
Speltz ML, Endriga MC, Fisher PA, Mason CA Early predictors of attachment in infants with cleft lip and/or palate. Child Develop. 1997; 68:(1)12-25
Maris CL, Endriga MC, Speltz ML, Jones KJ, De Klyen M Are infants with orofacial clefts at risk of insecure mother-child attachments?. Cleft Palate Craniofac J. 2000; 37:(3)257-265
Young JL, O'Riordan M, Goldstein JA, Robin NH What information do parents of newborns with cleft lip, palate, or both want to know?. The Cleft Palate-Craniofac J. 2001; 38:(1)55-58
Habel A, Elhadi N, Sommerlad B, Powell J Delayed detection of cleft palate: an audit of newborn examination. Arch Dis Child. 2006; 91:238-240
Nurses Special Interest Group for Cleft Lip and Palate. (Accessed on 25 Feb 2010)
Glass RP, Wolf LS Feeding management of infants with cleft lip and palate and micrognathia. Infants and Young Children. 1999; 12:(1)70-81
Geddes DT, Kent JC, Mitoulas LR, Hartmann PE Tongue movements and intra-oral vacuum in breastfeeding infants. Early Human Develop. 2008; 84:471-477
Trahms CM, Pipes PL, 6th edn. New York, NY: WCB/McGraw-Hill; 1997
Lazarus D, Hudson D, Fleming A, Goddard E, Fernandes D Are children with clefts underweight for age at the time of primary surgery?. Plastic Reconstr Surg. 1999; 103:1624-1629
Jones WB Weight gain and feeding in the neonate with cleft: a three centre study. Cleft Palate J. 1988; 25:(4)379-384
Bowers E, Rosario F, Linton A, Whitaker P, Pasquariello D, Randell P General body growth in children with clefts of the lip, palate and craniofacial structure. Scand J Reconstr Surg. 1987; 21:7-14
Pandya AN, Boorman JG Failure to thrive in babies with cleft lip and palate. Br J Plast Surg. 2001; 54:471-475
Lee J, Nunn J, Wright C Height and weight achievement in cleft lip and palate. Arch Dis Child. 1997; 76:(1)70-72
Raynor P, Rudolph MCJ Anthropometric indices of failure to thrive. Arch Dis Child. 2000; 82:364-365
Sinclair-Smith C, Dinsdale F, Emery J Evidence, duration and type of illness in children found unexpectedly dead. Arch Dis Child. 1976; 51:424-429
Beaumont D A study into weight gain in infants with cleft lip/palate. Paediatr Nurs. 2008; 20:(6)20-23
The presence of a clinical nurse specialist within the multidisciplinary cleft team has become commonplace across many regions in the UK, with an aim to improve the quality of nursing care in this patient group. The role of the clinical nurse specialist may commence in the antenatal period, progress through birth and infancy, and extend into childhood in concurrence with the surgical procedures. The initial focus is on early feeding advice and management, and the provision of support to facilitate the exploration of feelings and anxieties in relation to the cleft.
Clinical Relevance: This paper enhances knowledge of cleft lip and palate, and an understanding of the Clinical Nurse Specialist's role within a multidisciplinary setting.
Article
The Clinical Standards Advisory Group (CSAG) reported on Cleft Lip and Palate services in England and Wales in 1998.1 In summary, the report showed outcomes at the time that were, at best, average when compared with outcomes in key European Cleft Centres. This subsequently led to a government directive to establish Regional Cleft Lip and Palate Services, with an aim to improve the quality and equity of care to this patient group. By adopting these recommendations, the number of cleft centres reduced to nine, each with a dedicated multidisciplinary team focusing on cleft lip and palate care, and surgeons undertaking a high volume of primary surgical procedures annually.1
During this process, it was acknowledged that new parents had a requirement for information, support and early feeding intervention. Prior to this change, nursing support for families was inconsistent and varied according to geographical location, whereas now it is commonplace for the clinical nurse specialist to be at the core of the multidisciplinary team, making that all important initial contact with parents. This paper explores the role of the clinical nurse specialist from the Leeds site of the Northern and Yorkshire Regional Cleft Lip and Palate Service, although many aspects of our team are now reflected widely across the country.
Register now to continue reading
Thank you for visiting Orthodontic Update and reading some of our resources. To read more, please register today. You’ll enjoy the following great benefits:
